Monday, April 28, 2008
Bitchfest!!!!
I'm so angry I can hardly type! I find out today that my Dr wants me to start back on the fragmin, without a test to see if it is still necessary! I don't have a follow up appointment with my oncologist for another 2 weeks, and my Dr won't be there, so I'll see someone else who I've only met once. My Dr won't order a sonogram of my arm to see the status of the clot they seem so worried about, but wants me to start injecting myself with blood thinners again TODAY, and to continue for the next 2 weeks, when they will discuss this with me and they will write a new "script", at that time for more of the same. I was told that I needed to stay on the Fragmin till my surgery, which was 12 days ago. Two days after surgery, my surgeons nurse called me to tell me I could start back on the Fragmin. I emailed my oncologist's nurse to ask her about this, 10 days ago, and recieved no reply, though I know she got the email, as I recieved an auto-reply when she opened it. I figured I was done with the damn things, and was very happy. Now that nurse is on vacation, and I find out that I'm supposed to be injecting myself with the damn stuff, and they want me to start today, and continue till God knows when, without checking to see if the clot is even still there. I've called the patient advocate, but had to leave a message, which really pisses me off even more. I hate leaving voice mail! Why can't they order a sonagram to check. It has been just short of 5 months since this started. And Why, if they knew I was going to have to continue the injections after surgery, didn't they level with me, and tell me up front, instead of letting me think I was done? That is the second thing I found out today that is upsetting to me. I feel like they weren't honest with me about what is involved with lymph node biopsy, and now, to find out that I was misinformed about this is just too much!!!!
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