Saturday, October 31, 2009

Happy Halloween!...

WOW! We got so much done today! All the large furniture is in place. The dryer is in the laundry room. We will need to change the plug on it, but that shouldn't be a problem. We even took time for some target practice before dinner...

Thank-you Linda and Jim for the help, friendship, and the chance to perforate aluminum cans in the field... LOL :-D

On a sad note, we are missing our goose. He was locked up with the flock last evening, was around earlier, but didn't show up to be fed tonight, or locked back up with the ducks.

Friday, October 30, 2009

Friday 10/30/09

Count down to Halloween wedding has the Sinched group busy doing last minute stuff. They will be gone all day tomorrow, supervising the dressing of the wedding party, ETC. I've friends coming over to help move furniture, and my dryer into the house. The weather is supposed to be clear and cool.

Sunday, another friend is coming over to see what we can do about my entryway problem. Moving furniture with the front end loader is easier than using a dolly on the inadequate steps, so it is a good thing we have "big blue."

I have a mouse in my house. I saw him this morning. He was most likely up inside the washing machine, and got a free lift. We need mouse traps.

Next week's schedule update...

It looks like I'll be at MDACC 4 days next week. I checked last night, and they have added another appointment for my neurosurgen on Friday, after seeing the radiation oncologist on Thursday...I wonder how much a hotel room would compared to a 2 hour round trip, and parking, 4 days in a row?

Thursday, October 29, 2009

Waiting...

is hard to do when you aren't feeling well enough to do much. The drugs I'm on play hell with my sleeping, and I'm jittery, so finishing a task is hard. Even reading isn't easy, due to the mess inside my head. I'm trying to accept the small things I can get done, and look forward to getting more of my life back soon. If i get one box emptied, that is one less to do later. Prayers, positive energy, good wishes are always welcome...

We are expecting 1-3 inches more rain tomorrow, as well as much cooler temps. The weekend is supposed to be great, and next week looks drier. Of course, I'm slated to be at MDACC at least 3 days next week, one of those days to include chemo, so I don't expect to get everything moved yet again. I hope we can move my dryer at leaST, So I can wash my clothes without carrying them next door...

Wednesday, October 28, 2009

update...10/28/09

Met my neurosurgeon today. He is scheduling me for tests next Tuesday, repeat CT scans of my Chest and abdomen as well as others to try and track the source of my blood clots. This is important because as long as there is anything in my brain, I'm at risk of bleeding there from bloodthinners.
I'll meet with my medical oncologist, discuss lung tumors, and changes in Chemotherapy. I'm scheduled for gamma ray treatment on 11/9/09. This is a day "surgery". Barring any problems, I'll be home the same day, with 4 small holes around my head, under band aids, from the positioning frame. I'll be followed up with MRIs at least every 90 days for at least a year. Many advantages to this treatment include the fact it can be repeated, if necessary, can be followed up with open procedure later, if necessary, and is so noninvasive.

I had been having trouble with itching of the skin, so my steroids were reduced to 3 times a day instead of 4.

On other notes, we have caught up on rainfall here. The ponds are full, and mud is everywhere. Due to the rain, we still have furniture in our storage container, that needs moved into the house. We are dogging the sellers of our house about various issues, and hope to have all resolved soon. I'm still going to file with the BBB...


We hooked up the clothes washer, and have run it through a full cycle, but the dryer is still in the barn. I'm slowly getting boxes unpacked, and the contence put away...

Tuesday, October 27, 2009

Saturday, October 24, 2009

brain tumor treatment...Gamma ray knife

to cut to the chase, the neurosurgeon recommends this as my best treatment option. it is a non-invasive, outpatient procedure, using many, focused gamma rays to stop tumor growth. No incision, just 4 small holes drilled into the skull for positioning of a Halo frame for precise aiming of radiation. fast recovery, good results that can be repeated if need be. the main worry at this time is the blood thinners that
I've been on for months, and finding the source of the blood clots that showed up in my lungs, making the blood thinners necessary. Without knowing that, there is no way to prevent more from forming, and any kind of blood thinners increase the chance of bleeding into the brain when a tumor is present. Why can't my life be simple?

update 10/24/09

Sorry for the lack of updates, but we needed to shut off our Internet service for a while, and then things just went to hell...

On Monday of this week, I noticed something was wrong while I was driving to the bank and grocery store. I wasn't sure what it was, just driving was difficult. Started to notice I was dropping things and running into doorways and walls. Walking up or down steps took more concentration than normal. I am due for CT scans Nov 3rd at MDACC, so called my Dr's nurse, to see if he would order a brain CT at the same time 3 days with no response, so I decided it might be a sinus infection with inner ear involvement, so called Kelsey SEYBOLD, AND MADE A WORK IN APPOINTMENT FOR WHAT I THOUGHT WAS 9:45 AM. daughter and son-in law dropped me off, as they had errands to run. Got there, found out appointment was let go for no-show cause it was for 9:30. Dr said come on anyway(thank-God) She asked what symptoms I was having, did some simple neurological tests, (think sobriety) I failed the walk toe to heel, and a couple of the closed eyes ones, so she orders a stat, in house brain CT scan. The scan showed a golf ball sized tumor in my right pariatal lobe, with milky looking fluid around it. She sent me to MDACC Emergency Center, with written notes on her,and CT findings. Now, she never mentioned the tumor, just fluid/swelling. As I was waiting in the lobby for my ride, I red the reports, so was all by myself when I found out my cancer had spread. I called my husband, who was working in Galveston, and not due home till today, to meet me at MDACC Emergency. Got there about 1:00, Again just dropped off, as they needed to be able to pick-up grandson after school, but husband was in route. Shortest wait ever at this location.After a quick evaluation, They started an IV, and ordered an MRI of my brain, cause, being digital, there is more resolution. I was checked into a treatment room in the emergency center, and calls were sent out to neurology. They started me on IV steroids to reduce the swelling, but because they didn't know what the neurosurgeon would want to do, they wouldn't let me eat. I had breakfast about 8:30 Am, and didn't get a chance to eat again till 10:30 that night. I say a picture of the MRI, and it looks like I have a golf ball embedded in the upper right side of my brain, with about a hand sized milky cloud surrounding it. it is treatable, more so than what is in my lungs. more options. To be continued. off to research the preferred treatment...

Thursday, October 1, 2009

Update on new house...

Caution, Rant Alert!!! DO NOT DEAL WITH OAK CREEK HOMES! We went to their home center in Brookshire, west of Houston looking for a mobile home. They were having a Red Tag Sale, to clear out their model homes, and make room for the new models. We found a nice, 3 bedroom 2 bath double wide, signed the papers, and were assured that they could have it on our property by 9/18. Once the financing was approved, it started raining, and delayed the building of the pad for the house, so I was sure they wouldn't make the 18th. They surprised me, and made the deadline. THAT HAS BEEN THE FIRST AND LAST THING DONE IN A TIMELY FASHION. The bank released the funds once the house was on site and tied down, so now they have their money. We waited 8 days for an inspection, before they could do the "trim out", and finish work. We got word that the inspection was finished last Friday, 9/25, but could they send out their guy to work on it? NOOOO! WE HAD TO WAIT UNTIL WEDNESDAY,9/30 FOR HIM TO SHOW UP. 12 days after the house was delivered. We have no steps into the house, cause, I just found out, that the delivery guys left them, by mistake, on the lot. NOW I WOULD THINK IN 12 DAYS, THEY COULD HAVE GOTTEN THEM DOWN HERE, BUT NO, WE JUST FOUND OUT TODAY THAT THEY SHOULD HAVE BEEN HERE SINCE 9/18. We still need the carpet stretched, and tacked down, the skirting put on, and the AC unit installed. Now, they wouldn't write the work order for the AC until the electric is hooked up. It was hooked up about 12:30 today. Do we have AC? NO! And it will be Tuesday before they can bring it out... I'm very angry, and frustrated right now. My Daughter's house is a Clayton Home. It is 900 sq ft larger than out new house, and they got everything done in 2 days, down to the final walk through, and Clayton didn't get their money until then. I'm sorry that I didn't go with Clayton Homes. BEWARE, DO NOT DEAL WITH OAK CREEK HOMES!!!