Wednesday, April 30, 2008

Update...

After a frustrating couple of days, I think someone was actually listening...

As I wrote, my oncologist wants me to continue the Fragmin injections, which I strongly objected to, without any kind of testing to see if it was needed. I called the patient advocates office, and the woman I spoke to said she would have my Dr call me. This was on Monday. I waited all day Tuesday for a call. When it got late in the afternoon, I called her back, got her voice mail, left a message, and got no response. I gave myself an injection, and went to bed angry. I only had one more syringe, so I needed to go to MDACC and pick up more. While I was there, before I went to the pharmacy, I went to the advocates office, and went through my song and dance in person to two nice young women, who said they would see what they could find out from my Dr and get back to me quickly, because I told them I didn't want to fill the prescription if I didn't need it. I sat down to eat lunch and wait. When the call came It wasn't what I wanted to hear. The woman on the phone, (still not my Dr), told me that it was important for me to stay on the fragmin to avoid a potentially fatal blood clot traveling to my lung. I again stressed my dis-satisfaction with being on this blood thinner without anyone checking to see if it was still necessary. She put me on hold, to check with a pharmacist, who said the same thing.
I gave in, and agreed to continue the injections, under protest, and hung up on her. I filled the prescription, and drove out to the farm to feed the stock, and spend some time alone, to cool off. I'm sure my blood pressure was sky high.

Tonight, I received an email that I had an appointment next Wednesday. This was news to me. The only appointment I knew about was one on Monday with my radiation oncologist.
When I logged on to my MDAnderson website to check my appointment schedule, I now have an appointment for an ultrasound, and an appointment with my own oncologist the same day, not his colleague the week after.

I left there thinking I had been spinning my wheels, without success, but someone was listening. If the test shows I need the fragmin, I will continue the injections without complaint, I just want to make sure the pain and expense are necessary.

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